In front of several hundred people gathered for the event, the 14-year old girl, who is a karting enthusiast, hit the gas to climb up a ramp and then fell 5.5 metres further down, passing over two cars. The feat was partly achieved thanks to her father Didier, a mechanicsRead More →
On Wednesday 6 February 2019, as part of Olympic and Paralympic Week, all the students of Academic City Elementary ran for the ELA association, which works to combat leukodystrophy, a rare genetic disease. Students from CP to CM2 put on their trainers to “beat the disease”. At the end ofRead More →
On Friday 23 March 2018, Guy Alba (President of ELA International), Pascal Prin (President of ELA France) and Laurent Caredda (President of Almerys) met in Paris to sign a partnership agreement between ELA and Almerys (a health data hosting company). This contract is part of the Leuconnect project, an onlineRead More →
Veuillez découvrir le contenu du 2nd Symposium ELA At an event organised by ELA International, eminent specialists from several disciplines and countries (USA, Italy, Spain, England, Germany, Holland, France,etc.) were brought together in the presence of patient representatives to enrich their mutual approaches to leukodystrophies (degenerative brain diseases that affectRead More →
The launch of Crystalfoot took place on June 12 at Baccarat in Paris where Zinedine Zidane unveiled the exceptional work of art in the presence of numerous guests, loyal sponsors and the international press. A loyal ambassador and involved in the fight for ELA for 18 years, Zinédine Zidane himselfRead More →
This Friday, September 28, 2018 was held the ELA / MLD Research Group consortium. During the symposium organised by ELA international in Luxembourg in December 2017, new avenues of reflection were set up for medical research on leukodystrophies. Following on from this symposium, Caroline Sevin, pediatrician at the reference centerRead More →
