{"id":1805,"date":"2020-02-20T11:09:23","date_gmt":"2020-02-20T10:09:23","guid":{"rendered":"http:\/\/elainternational.eu\/?page_id=1805"},"modified":"2023-11-21T08:48:48","modified_gmt":"2023-11-21T07:48:48","slug":"archives","status":"publish","type":"page","link":"https:\/\/old.elainternational.eu\/en\/archives\/","title":{"rendered":"Archives News"},"content":{"rendered":"<style type='text\/css' media='all'>#rt-tpg-container-3111549879 .rt-holder .rt-woo-info .price{color:#000000;}body .rt-tpg-container .rt-tpg-isotope-buttons .selected,\n\t\t\t\t\t#rt-tpg-container-3111549879 .layout12 .rt-holder:hover .rt-detail,\n\t\t\t\t\t#rt-tpg-container-3111549879 .isotope8 .rt-holder:hover .rt-detail,\n\t\t\t\t\t#rt-tpg-container-3111549879 .carousel8 .rt-holder:hover .rt-detail,\n\t\t\t\t\t#rt-tpg-container-3111549879 .layout13 .rt-holder .overlay .post-info,\n\t\t\t\t\t#rt-tpg-container-3111549879 .isotope9 .rt-holder .overlay .post-info,\n\t\t\t\t\t#rt-tpg-container-3111549879.rt-tpg-container .layout4 .rt-holder .rt-detail,\n\t\t\t\t\t.rt-modal-3111549879 .md-content,\n\t\t\t\t\t.rt-modal-3111549879 .md-content > .rt-md-content-holder .rt-md-content,\n\t\t\t\t\t.rt-popup-wrap-3111549879.rt-popup-wrap .rt-popup-navigation-wrap,\n\t\t\t\t\t#rt-tpg-container-3111549879 .carousel9 .rt-holder .overlay .post-info{background-color:#000000;}#rt-tpg-container-3111549879 .layout5 .rt-holder .overlay, #rt-tpg-container-3111549879 .isotope2 .rt-holder .overlay, #rt-tpg-container-3111549879 .carousel2 .rt-holder .overlay,#rt-tpg-container-3111549879 .layout15 .rt-holder h3, #rt-tpg-container-3111549879 .isotope11 .rt-holder h3, #rt-tpg-container-3111549879 .carousel11 .rt-holder h3, #rt-tpg-container-3111549879 .layout16 .rt-holder h3,\n\t\t\t\t\t#rt-tpg-container-3111549879 .isotope12 .rt-holder h3, #rt-tpg-container-3111549879 .carousel12 .rt-holder h3 {background-color:rgba(0,0,0,0.8);}#rt-tpg-container-3111549879 .pagination-list li a,\n\t\t\t\t\trt-tpg-container-3111549879 .pagination-list li span,\n\t\t\t\t\trt-tpg-container-3111549879 .pagination li a,\n\t\t\t\t\t#rt-tpg-container-3111549879 .rt-tpg-isotope-buttons button,\n\t\t\t\t\t#rt-tpg-container-3111549879 .rt-tpg-utility .rt-tpg-load-more button,\n\t\t\t\t\t#rt-tpg-container-3111549879.rt-tpg-container .swiper-navigation .slider-btn,\n\t\t\t\t\t#rt-tpg-container-3111549879.rt-tpg-container .swiper-pagination-bullet,\n\t\t\t\t\t#rt-tpg-container-3111549879 .wc1 .rt-holder .rt-img-holder .overlay .product-more ul li a,\n\t\t\t\t\t#rt-tpg-container-3111549879 .wc2 .rt-detail .rt-wc-add-to-cart,\n\t\t\t\t\t#rt-tpg-container-3111549879 .wc3 .rt-detail .rt-wc-add-to-cart,\n\t\t\t\t\t#rt-tpg-container-3111549879 .wc4 .rt-detail .rt-wc-add-to-cart,\n\t\t\t\t\t#rt-tpg-container-3111549879 .wc-carousel2 .rt-detail .rt-wc-add-to-cart,\n\t\t\t\t\t#rt-tpg-container-3111549879 .wc-isotope2 .rt-detail .rt-wc-add-to-cart,\n\t\t\t\t\t#rt-tpg-container-3111549879 .rt-layout-filter-container .rt-filter-wrap .rt-filter-item-wrap.rt-filter-dropdown-wrap .rt-filter-dropdown,\n\t\t\t\t\t#rt-tpg-container-3111549879 .rt-layout-filter-container .rt-filter-sub-tax.sub-button-group .rt-filter-button-item,\n\t\t\t\t\t#rt-tpg-container-3111549879.rt-tpg-container .rt-pagination-wrap .rt-page-numbers .paginationjs .paginationjs-pages ul li>a,\n\t\t\t\t\t#rt-tpg-container-3111549879 .rt-filter-item-wrap.rt-filter-button-wrap span.rt-filter-button-item,\n\t\t\t\t\t#rt-tpg-container-3111549879.rt-tpg-container .rt-pagination-wrap  .rt-loadmore-btn,\n\t\t\t\t\t#rt-tpg-container-3111549879.rt-tpg-container .rt-pagination-wrap .rt-cb-page-prev-next > *,\n\t\t\t\t\t#rt-tpg-container-3111549879 .rt-read-more,\n\t\t\t\t\t#rt-tooltip-3111549879, #rt-tooltip-3111549879 .rt-tooltip-bottom:after{background-color:#e71d73;}#rt-tpg-container-3111549879 .rt-filter-item-wrap.rt-filter-button-wrap span.rt-filter-button-item,\n\t\t\t\t\t#rt-tpg-container-3111549879 .rt-layout-filter-container .rt-filter-sub-tax.sub-button-group .rt-filter-button-item{border-color:#e71d73;}#rt-tpg-container-3111549879.rt-tpg-container .layout17 .rt-holder .overlay a.tpg-zoom .fa{color:#e71d73;}#rt-tpg-container-3111549879 .rt-holder .read-more a {background-color:#e71d73;padding: 8px 15px;}#rt-tpg-container-3111549879 .pagination li.active span,\n\t\t\t\t\t#rt-tpg-container-3111549879 .pagination-list li.active span,\n\t\t\t\t\t#rt-tpg-container-3111549879 .rt-tpg-isotope-buttons button.selected,\n\t\t\t\t\t#rt-tpg-container-3111549879 .rt-filter-item-wrap.rt-filter-button-wrap span.rt-filter-button-item.selected,\n\t\t\t\t\t#rt-tpg-container-3111549879 .rt-layout-filter-container .rt-filter-sub-tax.sub-button-group .rt-filter-button-item.selected,\n\t\t\t\t\t#rt-tpg-container-3111549879.rt-tpg-container .rt-pagination-wrap .rt-page-numbers .paginationjs .paginationjs-pages ul li.active>a,\n\t\t\t\t\t#rt-tpg-container-3111549879.rt-tpg-container .swiper-pagination-bullet.swiper-pagination-bullet-active-main{background-color:#991054;}#rt-tpg-container-3111549879 .rt-filter-item-wrap.rt-filter-button-wrap span.rt-filter-button-item.selected,\n\t\t\t\t\t#rt-tpg-container-3111549879 .rt-layout-filter-container .rt-filter-sub-tax.sub-button-group .rt-filter-button-item.selected,\n\t\t\t\t\t#rt-tpg-container-3111549879.rt-tpg-container .rt-pagination-wrap .rt-page-numbers .paginationjs .paginationjs-pages ul li.active>a{border-color:#991054;}#rt-tpg-container-3111549879 .pagination-list li a:hover,\n\t\t\t\t\t#rt-tpg-container-3111549879 .pagination li a:hover,\n\t\t\t\t\t#rt-tpg-container-3111549879 .rt-tpg-isotope-buttons button:hover,\n\t\t\t\t\t#rt-tpg-container-3111549879 .rt-holder .read-more a:hover,\n\t\t\t\t\t#rt-tpg-container-3111549879 .rt-tpg-utility .rt-tpg-load-more button:hover,\n\t\t\t\t\t#rt-tpg-container-3111549879.rt-tpg-container .swiper-pagination-bullet:hover,\n\t\t\t\t\t#rt-tpg-container-3111549879.rt-tpg-container .swiper-navigation .slider-btn:hover,\n\t\t\t\t\t#rt-tpg-container-3111549879 .wc1 .rt-holder .rt-img-holder .overlay .product-more ul li a:hover,\n\t\t\t\t\t#rt-tpg-container-3111549879 .wc2 .rt-detail .rt-wc-add-to-cart:hover,\n\t\t\t\t\t#rt-tpg-container-3111549879 .wc3 .rt-detail .rt-wc-add-to-cart:hover,\n\t\t\t\t\t#rt-tpg-container-3111549879 .wc4 .rt-detail .rt-wc-add-to-cart:hover,\n\t\t\t\t\t#rt-tpg-container-3111549879 .wc-carousel2 .rt-detail .rt-wc-add-to-cart:hover,\n\t\t\t\t\t#rt-tpg-container-3111549879 .wc-isotope2 .rt-detail .rt-wc-add-to-cart:hover,\n\t\t\t\t\t#rt-tpg-container-3111549879 .rt-layout-filter-container .rt-filter-wrap .rt-filter-item-wrap.rt-filter-dropdown-wrap .rt-filter-dropdown .rt-filter-dropdown-item:hover,\n\t\t\t\t\t#rt-tpg-container-3111549879 .rt-layout-filter-container .rt-filter-wrap .rt-filter-item-wrap.rt-filter-dropdown-wrap .rt-filter-dropdown .rt-filter-dropdown-item.selected,\n\t\t\t\t\t#rt-tpg-container-3111549879 .rt-filter-item-wrap.rt-filter-button-wrap span.rt-filter-button-item:hover,\n\t\t\t\t\t#rt-tpg-container-3111549879 .rt-layout-filter-container .rt-filter-sub-tax.sub-button-group .rt-filter-button-item:hover,\n\t\t\t\t\t#rt-tpg-container-3111549879.rt-tpg-container .rt-pagination-wrap .rt-page-numbers .paginationjs .paginationjs-pages ul li>a:hover,\n\t\t\t\t\t#rt-tpg-container-3111549879.rt-tpg-container .rt-pagination-wrap .rt-cb-page-prev-next > *:hover,\n\t\t\t\t\t#rt-tpg-container-3111549879.rt-tpg-container .rt-pagination-wrap  .rt-loadmore-btn:hover,\n\t\t\t\t\t#rt-tpg-container-3111549879 .rt-read-more:hover,\n\t\t\t\t\t#rt-tpg-container-3111549879 .rt-tpg-utility .rt-tpg-load-more button:hover{background-color:#590032;}#rt-tpg-container-3111549879 .rt-filter-item-wrap.rt-filter-button-wrap span.rt-filter-button-item:hover,\n\t\t\t\t\t\t#rt-tpg-container-3111549879 .rt-layout-filter-container .rt-filter-sub-tax.sub-button-group .rt-filter-button-item:hover,\n\t\t\t\t\t\t#rt-tpg-container-3111549879.rt-tpg-container .swiper-navigation .slider-btn:hover,\n\t\t\t\t\t\t#rt-tpg-container-3111549879.rt-tpg-container .rt-pagination-wrap .rt-page-numbers .paginationjs .paginationjs-pages ul li>a:hover{border-color:#590032;}#rt-tpg-container-3111549879.rt-tpg-container .layout17 .rt-holder .overlay a.tpg-zoom:hover .fa{color:#590032;}#rt-tpg-container-3111549879 .pagination-list li a,\n\t\t\t\t\t#rt-tpg-container-3111549879 .pagination li a,\n\t\t\t\t\t#rt-tpg-container-3111549879 .rt-tpg-isotope-buttons button,\n\t\t\t\t\t#rt-tpg-container-3111549879 .rt-holder .read-more a,\n\t\t\t\t\t#rt-tpg-container-3111549879 .rt-tpg-utility .rt-tpg-load-more button,\n\t\t\t\t\t#rt-tpg-container-3111549879.rt-tpg-container .swiper-navigation .slider-btn,\n\t\t\t\t\t#rt-tpg-container-3111549879 .wc1 .rt-holder .rt-img-holder .overlay .product-more ul li a,\n\t\t\t\t\t#rt-tpg-container-3111549879 .edd1 .rt-holder .rt-img-holder .overlay .product-more ul li a,\n\t\t\t\t\t#rt-tpg-container-3111549879 .wc2 .rt-detail .rt-wc-add-to-cart,\n\t\t\t\t\t#rt-tpg-container-3111549879 .wc3 .rt-detail .rt-wc-add-to-cart,\n\t\t\t\t\t#rt-tpg-container-3111549879 .edd2 .rt-detail .rt-wc-add-to-cart,\n\t\t\t\t\t#rt-tpg-container-3111549879 .wc4 .rt-detail .rt-wc-add-to-cart,\n\t\t\t\t\t#rt-tpg-container-3111549879 .edd3 .rt-detail .rt-wc-add-to-cart,\n\t\t\t\t\t#rt-tpg-container-3111549879 .wc-carousel2 .rt-detail .rt-wc-add-to-cart,\n\t\t\t\t\t#rt-tpg-container-3111549879 .wc-isotope2 .rt-detail .rt-wc-add-to-cart,\n\t\t\t\t\t#rt-tpg-container-3111549879 .rt-tpg-utility .rt-tpg-load-more button,\n\t\t\t\t\t#rt-tooltip-3111549879,\n\t\t\t\t\t#rt-tpg-container-3111549879 .rt-filter-item-wrap.rt-filter-button-wrap span.rt-filter-button-item,\n\t\t\t\t\t#rt-tpg-container-3111549879 .rt-layout-filter-container .rt-filter-sub-tax.sub-button-group .rt-filter-button-item,\n\t\t\t\t\t#rt-tpg-container-3111549879 .rt-layout-filter-container .rt-filter-wrap .rt-filter-item-wrap.rt-sort-order-action,\n\t\t\t\t\t#rt-tpg-container-3111549879 .rt-layout-filter-container .rt-filter-wrap .rt-filter-item-wrap.rt-filter-dropdown-wrap .rt-filter-dropdown .rt-filter-dropdown-item,\n\t\t\t\t\t#rt-tpg-container-3111549879.rt-tpg-container .rt-pagination-wrap .rt-page-numbers .paginationjs .paginationjs-pages ul li>a,\n\t\t\t\t\t#rt-tpg-container-3111549879.rt-tpg-container .rt-pagination-wrap .rt-cb-page-prev-next > *,\n\t\t\t\t\t#rt-tpg-container-3111549879.rt-tpg-container .rt-pagination-wrap  .rt-loadmore-btn,\n\t\t\t\t\t#rt-tpg-container-3111549879 .rt-read-more,\n\t\t\t\t\t#rt-tooltip-3111549879 .rt-tooltip-bottom:after{color:#ffffff;}#rt-tpg-container-3111549879 .read-more a{border-radius:px;}#rt-tpg-container-3111549879 .rt-img-holder img.rt-img-responsive,#rt-tpg-container-3111549879 .rt-img-holder,\n\t\t\t\t\t#rt-tpg-container-3111549879 .rt-post-overlay .post-img,\n\t\t\t\t\t#rt-tpg-container-3111549879 .post-sm .post-img,\n\t\t\t\t\t#rt-tpg-container-3111549879 .rt-post-grid .post-img,\n\t\t\t\t\t#rt-tpg-container-3111549879 .post-img img {border-radius:px;}<\/style><div class='rt-container-fluid rt-tpg-container tpg-shortcode-main-wrapper ' id='rt-tpg-container-3111549879'   data-layout='layout3' data-grid-style='even' data-desktop-col='1'  data-tab-col='2'  data-mobile-col='1' data-sc-id='1820'><div data-title='Loading ...' class='rt-row rt-content-loader   layout3 tpg-even '><div class=\"rt-col-md-12 rt-col-sm-6 rt-col-xs-12 even-grid-item rt-grid-item\" data-id=\"5407\"><div class=\"rt-holder\"><div class=\"rt-row\"><div class='rt-col-sm-2 rt-col-xs-12 '><div class=\"rt-img-holder\"><a data-id='5407' class=' rounded' href='https:\/\/old.elainternational.eu\/en\/2024\/05\/15\/la-voix-des-patients-entendue\/'><img loading=\"lazy\" decoding=\"async\" width=\"150\" height=\"150\" src=\"https:\/\/old.elainternational.eu\/wp-content\/uploads\/2024\/05\/news_Takedi_entete-150x150.jpg\" class=\"rt-img-responsive \" alt=\"\" \/><\/a><\/div><\/div><div class='rt-col-sm-10 rt-col-xs-12 '><div class='rt-detail'><h2 class=\"entry-title\"><a data-id=\"5407\" class=\"\" href=\"https:\/\/old.elainternational.eu\/en\/2024\/05\/15\/la-voix-des-patients-entendue\/\">The patients&#8217; voice has been heard!<\/a><\/h2><div class='post-meta-user '><span class='date-meta'><i class='flaticon-calendar '><\/i>15 May 2024<\/span><span class='categories-links'><i class='flaticon-folder '><\/i><a class=\"international-en\" href=\"https:\/\/old.elainternational.eu\/en\/category\/international-en\/\" rel=\"tag\">International<\/a><\/span><\/div><div class='post-content'><p>ELA international is giving a voice to the parents of sick children who are speaking out against the planned discontinuation of a treatment currently under trial Scheduled discontinuation in 2024 In 2012, Takeda launched a clinical trial to evaluate the efficacy of an enzyme replacement therapy (TAK-611) in metachromatic leukodystrophy<a href=\"https:\/\/old.elainternational.eu\/en\/2024\/05\/15\/la-voix-des-patients-entendue\/\">Read More &rarr;<\/a>...<\/p><\/div><span class='read-more '><a data-id='5407' class='' href='https:\/\/old.elainternational.eu\/en\/2024\/05\/15\/la-voix-des-patients-entendue\/'>+<\/a><\/span><\/div><\/div><\/div><\/div><\/div><div class=\"rt-col-md-12 rt-col-sm-6 rt-col-xs-12 even-grid-item rt-grid-item\" data-id=\"5243\"><div class=\"rt-holder\"><div class=\"rt-row\"><div class='rt-col-sm-2 rt-col-xs-12 '><div class=\"rt-img-holder\"><a data-id='5243' class=' rounded' href='https:\/\/old.elainternational.eu\/en\/2024\/04\/03\/remboursement-libmeldy\/'><img loading=\"lazy\" decoding=\"async\" width=\"150\" height=\"150\" src=\"https:\/\/old.elainternational.eu\/wp-content\/uploads\/2024\/04\/minia_grande-Libmeldy-150x150.png\" class=\"rt-img-responsive \" alt=\"\" \/><\/a><\/div><\/div><div class='rt-col-sm-10 rt-col-xs-12 '><div class='rt-detail'><h2 class=\"entry-title\"><a data-id=\"5243\" class=\"\" href=\"https:\/\/old.elainternational.eu\/en\/2024\/04\/03\/remboursement-libmeldy\/\">Like 11 European countries, the United States approves the Libmeldy<\/a><\/h2><div class='post-meta-user '><span class='date-meta'><i class='flaticon-calendar '><\/i>3 April 2024<\/span><span class='categories-links'><i class='flaticon-folder '><\/i><a class=\"international-en\" href=\"https:\/\/old.elainternational.eu\/en\/category\/international-en\/\" rel=\"tag\">International<\/a><\/span><\/div><div class='post-content'><p>A rare and devastating genetic disease Metachromatic leukodystrophy (MLD) is a rare genetic disease, occurring at a rate of 1 in 45,000 births. It can begin in childhood, adolescence, or adulthood, and leads to severe neurological dysfunction affecting motor skills and cognitive functions, and potentially to death. Libmeldy: an innovative<a href=\"https:\/\/old.elainternational.eu\/en\/2024\/04\/03\/remboursement-libmeldy\/\">Read More &rarr;<\/a>...<\/p><\/div><span class='read-more '><a data-id='5243' class='' href='https:\/\/old.elainternational.eu\/en\/2024\/04\/03\/remboursement-libmeldy\/'>+<\/a><\/span><\/div><\/div><\/div><\/div><\/div><div class=\"rt-col-md-12 rt-col-sm-6 rt-col-xs-12 even-grid-item rt-grid-item\" data-id=\"5309\"><div class=\"rt-holder\"><div class=\"rt-row\"><div class='rt-col-sm-2 rt-col-xs-12 '><div class=\"rt-img-holder\"><a data-id='5309' class=' rounded' href='https:\/\/old.elainternational.eu\/en\/2024\/02\/27\/journee-internationale-des-maladies-rares-la-politique-du-1er-enfant-qui-sauve-le-2e-est-intolerable\/'><img loading=\"lazy\" decoding=\"async\" width=\"150\" height=\"150\" src=\"https:\/\/old.elainternational.eu\/wp-content\/uploads\/2024\/02\/news_JIMR_2024-150x150.jpg\" class=\"rt-img-responsive \" alt=\"\" \/><\/a><\/div><\/div><div class='rt-col-sm-10 rt-col-xs-12 '><div class='rt-detail'><h2 class=\"entry-title\"><a data-id=\"5309\" class=\"\" href=\"https:\/\/old.elainternational.eu\/en\/2024\/02\/27\/journee-internationale-des-maladies-rares-la-politique-du-1er-enfant-qui-sauve-le-2e-est-intolerable\/\">International Rare Disease Day: the policy of the 1st child who saves the 2nd is intolerable.<\/a><\/h2><div class='post-meta-user '><span class='date-meta'><i class='flaticon-calendar '><\/i>27 February 2024<\/span><span class='categories-links'><i class='flaticon-folder '><\/i><a class=\"international-en\" href=\"https:\/\/old.elainternational.eu\/en\/category\/international-en\/\" rel=\"tag\">International<\/a><\/span><\/div><div class='post-content'><p>ELA International warns of the importance of screening for leukodystrophies at birth. Diagnosed too late, Alice lost her speech and mobility in less than a month. As a result of this cataclysm, her little sister Coline was screened very early, even before the first symptoms of the disease appeared. That&#8217;s<a href=\"https:\/\/old.elainternational.eu\/en\/2024\/02\/27\/journee-internationale-des-maladies-rares-la-politique-du-1er-enfant-qui-sauve-le-2e-est-intolerable\/\">Read More &rarr;<\/a>...<\/p><\/div><span class='read-more '><a data-id='5309' class='' href='https:\/\/old.elainternational.eu\/en\/2024\/02\/27\/journee-internationale-des-maladies-rares-la-politique-du-1er-enfant-qui-sauve-le-2e-est-intolerable\/'>+<\/a><\/span><\/div><\/div><\/div><\/div><\/div><div class=\"rt-col-md-12 rt-col-sm-6 rt-col-xs-12 even-grid-item rt-grid-item\" data-id=\"4990\"><div class=\"rt-holder\"><div class=\"rt-row\"><div class='rt-col-sm-2 rt-col-xs-12 '><div class=\"rt-img-holder\"><a data-id='4990' class=' rounded' href='https:\/\/old.elainternational.eu\/en\/2023\/11\/06\/conseil-scientifique-dela-international-un-retour-en-presentiel-attendu\/'><img loading=\"lazy\" decoding=\"async\" width=\"150\" height=\"150\" src=\"https:\/\/old.elainternational.eu\/wp-content\/uploads\/2023\/10\/news_CS_30-10-2023-150x150.jpg\" class=\"rt-img-responsive \" alt=\"\" \/><\/a><\/div><\/div><div class='rt-col-sm-10 rt-col-xs-12 '><div class='rt-detail'><h2 class=\"entry-title\"><a data-id=\"4990\" class=\"\" href=\"https:\/\/old.elainternational.eu\/en\/2023\/11\/06\/conseil-scientifique-dela-international-un-retour-en-presentiel-attendu\/\">Scientific Committee of ELA International: a face to face much awaited<\/a><\/h2><div class='post-meta-user '><span class='date-meta'><i class='flaticon-calendar '><\/i>6 November 2023<\/span><span class='categories-links'><i class='flaticon-folder '><\/i><a class=\"international-en\" href=\"https:\/\/old.elainternational.eu\/en\/category\/international-en\/\" rel=\"tag\">International<\/a><\/span><\/div><div class='post-content'><p>This year, the autumn Scientific Committee meeting took place in a conference hotel in the center of Paris on Monday, October 23rd, for the first time in 3 years. Members of committee were happy to be gathered again for a studious day that allowed the evaluation of all the applications<a href=\"https:\/\/old.elainternational.eu\/en\/2023\/11\/06\/conseil-scientifique-dela-international-un-retour-en-presentiel-attendu\/\">Read More &rarr;<\/a>...<\/p><\/div><span class='read-more '><a data-id='4990' class='' href='https:\/\/old.elainternational.eu\/en\/2023\/11\/06\/conseil-scientifique-dela-international-un-retour-en-presentiel-attendu\/'>+<\/a><\/span><\/div><\/div><\/div><\/div><\/div><div class=\"rt-col-md-12 rt-col-sm-6 rt-col-xs-12 even-grid-item rt-grid-item\" data-id=\"4937\"><div class=\"rt-holder\"><div class=\"rt-row\"><div class='rt-col-sm-2 rt-col-xs-12 '><div class=\"rt-img-holder\"><a data-id='4937' class=' rounded' href='https:\/\/old.elainternational.eu\/en\/2023\/10\/25\/si-on-sy-met-tous-on-battra-les-leucodystrophies\/'><img loading=\"lazy\" decoding=\"async\" width=\"150\" height=\"150\" src=\"https:\/\/old.elainternational.eu\/wp-content\/uploads\/2023\/10\/news_MTB_2023-150x150.jpg\" class=\"rt-img-responsive \" alt=\"\" \/><\/a><\/div><\/div><div class='rt-col-sm-10 rt-col-xs-12 '><div class='rt-detail'><h2 class=\"entry-title\"><a data-id=\"4937\" class=\"\" href=\"https:\/\/old.elainternational.eu\/en\/2023\/10\/25\/si-on-sy-met-tous-on-battra-les-leucodystrophies\/\">Mets tes baskets et bats la maladie !<\/a><\/h2><div class='post-meta-user '><span class='date-meta'><i class='flaticon-calendar '><\/i>25 October 2023<\/span><span class='categories-links'><i class='flaticon-folder '><\/i><a class=\"france-en\" href=\"https:\/\/old.elainternational.eu\/en\/category\/france-en\/\" rel=\"tag\">France<\/a><\/span><\/div><div class='post-content'><p>Avec Tony Estanguet, Zin\u00e9dine Zidane, Florent Pagny et tous les ambassadeurs d\u2019ELA, relevons cet incroyable d\u00e9fi : \u00eatre 1 million sur la ligne de d\u00e9part et faire un 1 milliard de pas pour aider les enfants malades. Pr\u00eats \u00e0 mettre vos baskets ? \u201cMets tes baskets\u201d invite chaque ann\u00e9e les<a href=\"https:\/\/old.elainternational.eu\/en\/2023\/10\/25\/si-on-sy-met-tous-on-battra-les-leucodystrophies\/\">Read More &rarr;<\/a>...<\/p><\/div><span class='read-more '><a data-id='4937' class='' href='https:\/\/old.elainternational.eu\/en\/2023\/10\/25\/si-on-sy-met-tous-on-battra-les-leucodystrophies\/'>+<\/a><\/span><\/div><\/div><\/div><\/div><\/div><div class=\"rt-col-md-12 rt-col-sm-6 rt-col-xs-12 even-grid-item rt-grid-item\" data-id=\"4441\"><div class=\"rt-holder\"><div class=\"rt-row\"><div class='rt-col-sm-2 rt-col-xs-12 '><div class=\"rt-img-holder\"><a data-id='4441' class=' rounded' href='https:\/\/old.elainternational.eu\/en\/2023\/09\/15\/une-petition-pour-sauver-des-enfants-prives-de-traitement-pour-des-raisons-commerciales\/'><img loading=\"lazy\" decoding=\"async\" width=\"150\" height=\"150\" src=\"https:\/\/old.elainternational.eu\/wp-content\/uploads\/2022\/11\/petition-change-150x150.jpg\" class=\"rt-img-responsive \" alt=\"\" \/><\/a><\/div><\/div><div class='rt-col-sm-10 rt-col-xs-12 '><div class='rt-detail'><h2 class=\"entry-title\"><a data-id=\"4441\" class=\"\" href=\"https:\/\/old.elainternational.eu\/en\/2023\/09\/15\/une-petition-pour-sauver-des-enfants-prives-de-traitement-pour-des-raisons-commerciales\/\">Sign the petition to save children from being denied treatment for commercial reasons<\/a><\/h2><div class='post-meta-user '><span class='date-meta'><i class='flaticon-calendar '><\/i>15 September 2023<\/span><span class='categories-links'><i class='flaticon-folder '><\/i><a class=\"international-en\" href=\"https:\/\/old.elainternational.eu\/en\/category\/international-en\/\" rel=\"tag\">International<\/a><\/span><\/div><div class='post-content'><p>Math\u00e9o could have been cured with a gene therapy invented in France. He was denied treatment for commercial reasons. To prevent this story from happening again, a mother of ELA calls out the French Ministers of Health and Research, as well as the Secretary General for Investment-France 2030 through a<a href=\"https:\/\/old.elainternational.eu\/en\/2023\/09\/15\/une-petition-pour-sauver-des-enfants-prives-de-traitement-pour-des-raisons-commerciales\/\">Read More &rarr;<\/a>...<\/p><\/div><span class='read-more '><a data-id='4441' class='' href='https:\/\/old.elainternational.eu\/en\/2023\/09\/15\/une-petition-pour-sauver-des-enfants-prives-de-traitement-pour-des-raisons-commerciales\/'>+<\/a><\/span><\/div><\/div><\/div><\/div><\/div><div class=\"rt-col-md-12 rt-col-sm-6 rt-col-xs-12 even-grid-item rt-grid-item\" data-id=\"4881\"><div class=\"rt-holder\"><div class=\"rt-row\"><div class='rt-col-sm-2 rt-col-xs-12 '><div class=\"rt-img-holder\"><a data-id='4881' class=' rounded' href='https:\/\/old.elainternational.eu\/en\/2023\/09\/15\/week-end-des-familles-dela-suisse-2023-a-charmey\/'><img loading=\"lazy\" decoding=\"async\" width=\"150\" height=\"150\" src=\"https:\/\/old.elainternational.eu\/wp-content\/uploads\/2023\/09\/News-Week-end-familles-suisse-770x425-1-150x150.jpg\" class=\"rt-img-responsive \" alt=\"\" \/><\/a><\/div><\/div><div class='rt-col-sm-10 rt-col-xs-12 '><div class='rt-detail'><h2 class=\"entry-title\"><a data-id=\"4881\" class=\"\" href=\"https:\/\/old.elainternational.eu\/en\/2023\/09\/15\/week-end-des-familles-dela-suisse-2023-a-charmey\/\">ELA Family Weekend Switzerland 2023<\/a><\/h2><div class='post-meta-user '><span class='date-meta'><i class='flaticon-calendar '><\/i>15 September 2023<\/span><span class='categories-links'><i class='flaticon-folder '><\/i><a class=\"switzerland\" href=\"https:\/\/old.elainternational.eu\/en\/category\/switzerland\/\" rel=\"tag\">Switzerland<\/a><\/span><\/div><div class='post-content'><p>From August 4 to 6, 2023, the ELA Suisse team welcomed the association&#8217;s families to the H\u00f4tel Cailler in Charmey (canton of Fribourg). On Saturday morning, the children had the pleasure of trying out different games in a workshop led by B\u00e9atrice Hess (honorary member of ELA). During this activity,<a href=\"https:\/\/old.elainternational.eu\/en\/2023\/09\/15\/week-end-des-familles-dela-suisse-2023-a-charmey\/\">Read More &rarr;<\/a>...<\/p><\/div><span class='read-more '><a data-id='4881' class='' href='https:\/\/old.elainternational.eu\/en\/2023\/09\/15\/week-end-des-familles-dela-suisse-2023-a-charmey\/'>+<\/a><\/span><\/div><\/div><\/div><\/div><\/div><div class=\"rt-col-md-12 rt-col-sm-6 rt-col-xs-12 even-grid-item rt-grid-item\" data-id=\"4759\"><div class=\"rt-holder\"><div class=\"rt-row\"><div class='rt-col-sm-2 rt-col-xs-12 '><div class=\"rt-img-holder\"><a data-id='4759' class=' rounded' href='https:\/\/old.elainternational.eu\/en\/2023\/05\/11\/pour-la-premiere-fois-un-garcon-recoit-une-therapie-genique-disponible-sur-le-marche-pour-ladrenoleucodystrophie-cerebrale-liee-a-lx-ald-aux-etats-unis\/'><img loading=\"lazy\" decoding=\"async\" width=\"150\" height=\"150\" src=\"https:\/\/old.elainternational.eu\/wp-content\/uploads\/2023\/05\/news_conner_duncan-150x150.jpg\" class=\"rt-img-responsive \" alt=\"\" \/><\/a><\/div><\/div><div class='rt-col-sm-10 rt-col-xs-12 '><div class='rt-detail'><h2 class=\"entry-title\"><a data-id=\"4759\" class=\"\" href=\"https:\/\/old.elainternational.eu\/en\/2023\/05\/11\/pour-la-premiere-fois-un-garcon-recoit-une-therapie-genique-disponible-sur-le-marche-pour-ladrenoleucodystrophie-cerebrale-liee-a-lx-ald-aux-etats-unis\/\">For the first time, a boy receives a commercially available gene therapy for cerebral X-linked adrenoleukodystrophy (ALD) in the United States<\/a><\/h2><div class='post-meta-user '><span class='date-meta'><i class='flaticon-calendar '><\/i>11 May 2023<\/span><span class='categories-links'><i class='flaticon-folder '><\/i><a class=\"usa\" href=\"https:\/\/old.elainternational.eu\/en\/category\/usa\/\" rel=\"tag\">USA<\/a><\/span><\/div><div class='post-content'><p>On March 16th, 2023, after thirty years of research started in France with the support of ELA, the first boy in the world received the FDA approved gene therapy for the cerebral form of adrenoleukodystrophy. Following a positive newborn screening, 6-year-olds Conner Hess from New York was followed closely to<a href=\"https:\/\/old.elainternational.eu\/en\/2023\/05\/11\/pour-la-premiere-fois-un-garcon-recoit-une-therapie-genique-disponible-sur-le-marche-pour-ladrenoleucodystrophie-cerebrale-liee-a-lx-ald-aux-etats-unis\/\">Read More &rarr;<\/a>...<\/p><\/div><span class='read-more '><a data-id='4759' class='' href='https:\/\/old.elainternational.eu\/en\/2023\/05\/11\/pour-la-premiere-fois-un-garcon-recoit-une-therapie-genique-disponible-sur-le-marche-pour-ladrenoleucodystrophie-cerebrale-liee-a-lx-ald-aux-etats-unis\/'>+<\/a><\/span><\/div><\/div><\/div><\/div><\/div><\/div><div class='rt-pagination-wrap' data-total-pages='11' data-posts-per-page='8' data-type='pagination'  ><div class=\"rt-pagination\" ><ul class=\"pagination-list\"><li class=\"active\"><span>1<\/span><\/li><li><a data-paged='2' href='https:\/\/old.elainternational.eu\/en\/wp-json\/wp\/v2\/pages\/1805\/page\/2\/'>2<\/a><\/li><li><a data-paged='3' href='https:\/\/old.elainternational.eu\/en\/wp-json\/wp\/v2\/pages\/1805\/page\/3\/'>3<\/a><\/li><li><a data-paged='4' href='https:\/\/old.elainternational.eu\/en\/wp-json\/wp\/v2\/pages\/1805\/page\/4\/'>4<\/a><\/li><li><a data-paged='5' href='https:\/\/old.elainternational.eu\/en\/wp-json\/wp\/v2\/pages\/1805\/page\/5\/'>5<\/a><\/li><li><a data-paged='2' href=\"https:\/\/old.elainternational.eu\/en\/wp-json\/wp\/v2\/pages\/1805\/page\/2\/\"  aria-label='Next'>&rsaquo;<\/a><\/li><li><a data-paged='11' href='https:\/\/old.elainternational.eu\/en\/wp-json\/wp\/v2\/pages\/1805\/page\/11\/' aria-label='Last'>&raquo;<\/a><\/li><\/ul><\/div><\/div><\/div>\n","protected":false},"excerpt":{"rendered":"<p><span class=\"more-link\"><a href=\"https:\/\/old.elainternational.eu\/en\/2023\/05\/11\/pour-la-premiere-fois-un-garcon-recoit-une-therapie-genique-disponible-sur-le-marche-pour-ladrenoleucodystrophie-cerebrale-liee-a-lx-ald-aux-etats-unis\/\">Read More &rarr;<\/a><\/span><\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"disable_featured_image":false,"footnotes":""},"rttpg_featured_image_url":null,"rttpg_author":{"display_name":"phonemELAint_19526","author_link":"https:\/\/old.elainternational.eu\/en\/author\/phonemelaint_19526\/"},"rttpg_comment":0,"rttpg_category":"","rttpg_excerpt":"Read More &rarr;","_links":{"self":[{"href":"https:\/\/old.elainternational.eu\/en\/wp-json\/wp\/v2\/pages\/1805"}],"collection":[{"href":"https:\/\/old.elainternational.eu\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/old.elainternational.eu\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/old.elainternational.eu\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/old.elainternational.eu\/en\/wp-json\/wp\/v2\/comments?post=1805"}],"version-history":[{"count":5,"href":"https:\/\/old.elainternational.eu\/en\/wp-json\/wp\/v2\/pages\/1805\/revisions"}],"predecessor-version":[{"id":1985,"href":"https:\/\/old.elainternational.eu\/en\/wp-json\/wp\/v2\/pages\/1805\/revisions\/1985"}],"wp:attachment":[{"href":"https:\/\/old.elainternational.eu\/en\/wp-json\/wp\/v2\/media?parent=1805"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}