{"id":4545,"date":"2023-03-01T12:00:32","date_gmt":"2023-03-01T11:00:32","guid":{"rendered":"https:\/\/elainternational.eu\/?p=4545"},"modified":"2023-03-01T12:00:32","modified_gmt":"2023-03-01T11:00:32","slug":"comite-dethique-ela-international","status":"publish","type":"post","link":"https:\/\/old.elainternational.eu\/en\/2023\/03\/01\/comite-dethique-ela-international\/","title":{"rendered":"Ethics committee ELA International"},"content":{"rendered":"<p>Following the symposium organized by ELA International in September 2022 on \u201cTherapeutic Innovation: what rules and access?\u201d, ELA International decided to set up a <strong>research ethics committee. <\/strong><\/p>\n<p>This committee brings together 11 experts in ethics, law, human sciences, representatives of ELA families, and scientists, to promote a collegial and multidisciplinary work.<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-4560\" src=\"https:\/\/elainternational.eu\/wp-content\/uploads\/2023\/02\/tableau-UK.jpg\" alt=\"\" width=\"1856\" height=\"650\" \/><\/p>\n<p>It will address ethical research issues for ELA such as:<\/p>\n<ul>\n<li>How to better involve patients in clinical research<\/li>\n<li>Facilitate access to treatments<\/li>\n<li>Accelerate new born screening of leukodystrophies<\/li>\n<li>Frame partnership of ELA International in research<\/li>\n<\/ul>\n<p>Members of the committee will work on the elaboration of an <strong>ethical charter<\/strong> to affirm the values of ELA that the association will be able to bring to general public.<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Following the symposium organized by ELA International in September 2022 on \u201cTherapeutic Innovation: what rules and access?\u201d, ELA International decided to set up a research ethics committee. This committee brings together 11 experts in ethics, law, human sciences, representatives of ELA families, and scientists, to promote a collegial and multidisciplinary<span class=\"more-link\"><a href=\"https:\/\/old.elainternational.eu\/en\/2023\/03\/01\/comite-dethique-ela-international\/\">Read More &rarr;<\/a><\/span><\/p>\n","protected":false},"author":3,"featured_media":4562,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"disable_featured_image":false,"footnotes":""},"categories":[54],"tags":[],"table_tags":[],"rttpg_featured_image_url":{"full":["https:\/\/old.elainternational.eu\/wp-content\/uploads\/2023\/03\/ethic.jpg",770,430,false],"landscape":["https:\/\/old.elainternational.eu\/wp-content\/uploads\/2023\/03\/ethic.jpg",770,430,false],"portraits":["https:\/\/old.elainternational.eu\/wp-content\/uploads\/2023\/03\/ethic.jpg",770,430,false],"thumbnail":["https:\/\/old.elainternational.eu\/wp-content\/uploads\/2023\/03\/ethic-150x150.jpg",150,150,true],"medium":["https:\/\/old.elainternational.eu\/wp-content\/uploads\/2023\/03\/ethic-300x168.jpg",300,168,true],"large":["https:\/\/old.elainternational.eu\/wp-content\/uploads\/2023\/03\/ethic.jpg",770,430,false],"1536x1536":["https:\/\/old.elainternational.eu\/wp-content\/uploads\/2023\/03\/ethic.jpg",770,430,false],"2048x2048":["https:\/\/old.elainternational.eu\/wp-content\/uploads\/2023\/03\/ethic.jpg",770,430,false],"hoot-medium-thumb":["https:\/\/old.elainternational.eu\/wp-content\/uploads\/2023\/03\/ethic-460x270.jpg",460,270,true],"hoot-preview":["https:\/\/old.elainternational.eu\/wp-content\/uploads\/2023\/03\/ethic-465x260.jpg",465,260,true],"hoot-large-thumb":["https:\/\/old.elainternational.eu\/wp-content\/uploads\/2023\/03\/ethic-690x430.jpg",690,430,true],"hoot-preview-large":["https:\/\/old.elainternational.eu\/wp-content\/uploads\/2023\/03\/ethic-695x388.jpg",695,388,true],"hoot-wide":["https:\/\/old.elainternational.eu\/wp-content\/uploads\/2023\/03\/ethic-770x425.jpg",770,425,true],"hoot-extra-wide":["https:\/\/old.elainternational.eu\/wp-content\/uploads\/2023\/03\/ethic-770x425.jpg",770,425,true]},"rttpg_author":{"display_name":"Recherche_ELAint","author_link":"https:\/\/old.elainternational.eu\/en\/author\/recherche_elaint\/"},"rttpg_comment":0,"rttpg_category":"<a href=\"https:\/\/old.elainternational.eu\/en\/category\/international-en\/\" rel=\"category tag\">International<\/a>","rttpg_excerpt":"Following the symposium organized by ELA International in September 2022 on \u201cTherapeutic Innovation: what rules and access?\u201d, ELA International decided to set up a research ethics committee. This committee brings together 11 experts in ethics, law, human sciences, representatives of ELA families, and scientists, to promote a collegial and multidisciplinaryRead More &rarr;","_links":{"self":[{"href":"https:\/\/old.elainternational.eu\/en\/wp-json\/wp\/v2\/posts\/4545"}],"collection":[{"href":"https:\/\/old.elainternational.eu\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/old.elainternational.eu\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/old.elainternational.eu\/en\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/old.elainternational.eu\/en\/wp-json\/wp\/v2\/comments?post=4545"}],"version-history":[{"count":9,"href":"https:\/\/old.elainternational.eu\/en\/wp-json\/wp\/v2\/posts\/4545\/revisions"}],"predecessor-version":[{"id":4561,"href":"https:\/\/old.elainternational.eu\/en\/wp-json\/wp\/v2\/posts\/4545\/revisions\/4561"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/old.elainternational.eu\/en\/wp-json\/wp\/v2\/media\/4562"}],"wp:attachment":[{"href":"https:\/\/old.elainternational.eu\/en\/wp-json\/wp\/v2\/media?parent=4545"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/old.elainternational.eu\/en\/wp-json\/wp\/v2\/categories?post=4545"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/old.elainternational.eu\/en\/wp-json\/wp\/v2\/tags?post=4545"},{"taxonomy":"table_tags","embeddable":true,"href":"https:\/\/old.elainternational.eu\/en\/wp-json\/wp\/v2\/table_tags?post=4545"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}